Page 3 of 7
Re: My Nephew needs another open heart surgery.
Posted: September 11 18, 1:16 pm
by lukethedrifter
wart57 wrote:lukethedrifter wrote:wart57 wrote:The test went well. The Doctor's said the results were unusual - of course they are - his heart plumbing is all backwards - that is what his issue is.
Won't know for a while when they want him to have his next surgery.
Thanks for the positive thoughts!
Dextrocardia? That’s what old friend jim had.
No, I think this is the actual name of it -
Total Anomalous Pulmonary Venous Connection (TAPVC)
In TAPVC, the blood does not take the normal route from the lungs to the heart and out to the body. Instead, the veins from the lungs attach to the heart in abnormal positions and this problem means that oxygenated blood enters or leaks into the wrong chamber.
The poor guys have real issues with blood oxygen levels, having to be on an oxygen pump quite often, and they get pneumonia often too.
Gotcha. Not the entire heart. Just plumbing. I believe your nephew’s condition is related to the fetal circulatory system not morphing into the standalone human system but i don’t feel like looking it up and might be wrong.
Re: My Nephew needs another open heart surgery.
Posted: September 11 18, 1:28 pm
by wart57
lukethedrifter wrote:wart57 wrote:lukethedrifter wrote:wart57 wrote:The test went well. The Doctor's said the results were unusual - of course they are - his heart plumbing is all backwards - that is what his issue is.
Won't know for a while when they want him to have his next surgery.
Thanks for the positive thoughts!
Dextrocardia? That’s what old friend jim had.
No, I think this is the actual name of it -
Total Anomalous Pulmonary Venous Connection (TAPVC)
In TAPVC, the blood does not take the normal route from the lungs to the heart and out to the body. Instead, the veins from the lungs attach to the heart in abnormal positions and this problem means that oxygenated blood enters or leaks into the wrong chamber.
The poor guys have real issues with blood oxygen levels, having to be on an oxygen pump quite often, and they get pneumonia often too.
Gotcha. Not the entire heart. Just plumbing. I believe your nephew’s condition is related to the fetal circulatory system not morphing into the standalone human system but i don’t feel like looking it up and might be wrong.
That sounds about right - both of the twins have this defect.
Re: My Nephew needs another open heart surgery.
Posted: November 26 18, 2:28 pm
by wart57
My Nephew is scheduled for his open heart surgery tomorrow - praying for a quick successful surgery and quick recovery.
Re: My Nephew needs another open heart surgery.
Posted: November 26 18, 2:48 pm
by G. Keenan
wart57 wrote:My Nephew is scheduled for his open heart surgery tomorrow - praying for a quick successful surgery and quick recovery.
Indeed. Best of luck to him, wart.
Re: My Nephew needs another open heart surgery.
Posted: November 27 18, 3:47 pm
by wart57
Having complications, they can't close his chest cavity due to bleeding....
They are going to leave his chest open over night in hopes that the oozing stops and then they can fully close up his chest bone in the morning.
More prayers and good vibes needed!
Re: My Nephew needs another open heart surgery.
Posted: November 27 18, 3:52 pm
by G. Keenan
wart57 wrote:Having complications, they can't close his chest cavity due to bleeding....
More prayers and good vibes needed!
Oh my goodness. Hang tough little guy.
Re: My Nephew needs another open heart surgery.
Posted: November 27 18, 3:56 pm
by wart57
Big brother and the tough little guy this morning before the surgery...

Re: My Nephew needs another open heart surgery.
Posted: November 27 18, 4:45 pm
by lukethedrifter
Hope all went well.
Re: My Nephew needs another open heart surgery.
Posted: November 27 18, 6:03 pm
by Tim
wart57 wrote:Having complications, they can't close his chest cavity due to bleeding....
They are going to leave his chest open over night in hopes that the oozing stops and then they can fully close up his chest bone in the morning.
More prayers and good vibes needed!
Praying brother
Re: My Nephew needs another open heart surgery.
Posted: November 28 18, 10:04 am
by GeddyWrox
Damn. Scary! Poor fella, and family. Not a praying sort, but thinking about him today.